Page topics that need to be thought about

Aug. 26, 2018

#TeamSickleCell needs to explain to people about whyyyyyyy getting transfusions has NOTHING to do with with us wanting to keep up with y’all! It’s about OUR reality and livelihood ...

Jul. 28, 2018
ASH Guidelines

It helps to have something on hand or on your person that can help you get treated appropriately wow in here all professionals who are lacking in knowledge about sicklecell.

Jul. 28, 2018

#Drs&nursespleaseREAD

For Sickle Cell Opioids Under Scope and Audience #46 CDC says refer to NIH 2014 Sickle Cell guidelines

CDC Guideline for Prescribing Opioids for Chronic Pain — United States, 2016

http://www.cdc.gov/mmwr/volumes/65/rr/rr6501e1.htm

States: "In addition, given the challenges of managing the painful complications of sickle cell disease, readers are referred to the NIH National Heart, Lung, and Blood Institute’s Evidence Based Management of Sickle Cell Disease Expert Panel Report for management of sickle cell disease (46)."

https://www.nhlbi.nih.gov/health-topics/evidence-based-management-sickle-cell-disease

and

#Drs&nursesjust4u

Did you know that The American Society of Hematology (ASH) created a Pocket Guide app for you to put on your cell phone that can help you with treating sickles cell disease!

http://www.hematology.org/Clinicians/Guidelines-Quality/Quick-Reference.aspx

Finally, Sickle Cell falls under Palliative Care:

Pain care becomes palliative care when three criteria are met:

● The underlying disease has no cure

● There is a likelihood the disease will shorten lifespan

● Symptomatic treatment has a high probability of improving the quality of life

WSCD 2018 theme:
Helping Others to Help Our Sickle Cell Community!!!

Dec. 12, 2017

I advocate because people need to know that this illness DOES NOT HAVE A TIME OUT! People need to know that just because I am NOT in the hospital DON'T MEAN I'M GOOD. People need to know that this PUSH THROUGH that we do on a daily TAKES EVERYTHING OUT OF US BUT WE TRY ANYWAY! IMAGINE WALKING FORWARD BUT GRAVITY IS PUSHING YOU BACK 24/7 WHILE BEING STABBED ALL THE WHILE... A DAY in the life of #TeamSickleCell SHAWNSTESTIMONY.COM 

Oct. 4, 2017
Let's do a #TundeClaireForSickleCell

I need your help family.Let's do a #TundeClaireForSickleCell i'm just trying to find ways to get the attention of those who need to know the reality of this illness and I think it's possible now so please please click on my link and just clap for me clap for SickleCell!