A #LUPIES RULES FROM TOP TO BOTTOM...YA HEARD!!
Here's a list of my lupus rules ( these are MY RULES, THAT I LIVE BY)
Please don't get dramatic and start spreading childish Facebook rumors saying "Theresa made up some #lupus rules" NO, THESE ARE MY RULES.. OKAY..continue😂😂
1.I Don't post about EVERYTHING that's causing me pain, example..a person can stub their toe and they'll upload a video of them crying.( I'm not talking about ppl who post about pain, I'm talking about
the people who overdo it) I'm sure ppl are going to say "Theresa you're wrong for saying that, when y'all know good and well y'all want to say it too.)
2. There is a big difference when you ask for resources in order to get medication you can't afford, instead of trying to get money out of other sick people.
3.when I say I'm here for you, that doesn't mean financially, encouraging words go a long way in my book.
4. Having a journal is a good thing, it helps with venting.
5.Family and real friends that you can talk to also helps with venting.
#Lupus awareness month is almost over, and let's be honest, some crazy crap has taking place, because of that, ppl who work their butt off by going to different states talking to mayors and governors demanding for more research when it comes to #lupus may become skeptical when they see a post about someone in need.
So, THANK YOU TO THE SCAMMERS, WHO USED #LUPUS AS A WAY TO GET OVER ON PPL WHO GENUINELY CARED ABOUT Y'ALL... NOW Y'ALL SCREWED EVERYTHING UP.
To my fellow #lupies who went hard and always go hard for #lupus, I thank you from the bottom of my heart.
I also want to thank those beautiful souls who supported us lupies this month, and every month.
My last rule..LAUGHTER IS THE BEST MEDICATION.
I just want it to go away.
The pain, the tears, the constant heartache.
The rashes, the kidney and blood infections that can easily kill us,
Yes, I'm talking about depression and the invisible disease called Lupus.
Hip replacements, knee replacements and migraines that make us sit in a dark place.
We are constantly being judged by Doctors, friends and family because despite what we go through we put a smile on our face.
Which makes them think we are faking because we tell everyone "we're okay"
Well, I can't pretend anymore, my soul is dying inside.
My laughter has disappeared and so has my pride.
I'm at the edge of the mountain, I don't want to jump, but I can't go back.
I have to find balance when Lupus attacks.
The truth is, I laugh and joke like everything is fine.
I can no longer put on this facade, its eating away my soul, body and mind.
I'm not trying to be negative in no way, shape or form.
All I'm saying is, it's okay for people with chronic illnesses to feel like their heart is torn.
Depression and Lupus go hand and hand.
I'm no longer embarrass to talk about it, it's time for me to take a stand.
Do you think I like being depressed? Don't you think I would snap out of it if I could.
One minute I'm laughing the next minute I'm crying. I'm not bipolar, I'm just misunderstood.
So, I go to a safe place where no one can see my fears.
No one can hear me scream, no one can dry my tears.
Everyday I shrink and I shrink, until finally, I Disappear.
( my words:Tre/Theresa Jones)
LUPUS AWARENESS WITH TRE
I want to help people and bring awareness to lupus, because 26 years ago when I was diagnosed with this horrible disease, their wasn't a lot of support or information, I've noticed that they are more focus on creating new medication for lupus, instead
of focusing on a cure.
However, money isn't in a cure, money is in the medication, Dr.visits,