WHAT IS THE QUESTION YOU HATE TO HEAR?
I truly DETEST the question HOW ARE YOU DOING? I ANSWER USUALLY BY SAYING...I'M BLESSED BECAUSE I'M ALIVE BECAUSE IT'S THE TRUTH BUT I KNOW THAT ISN'T WHAT THEY'RE ASKING! Sickle Cell is such a multifaceted drama queen AND THE FACT THAT IT'S A #BLOODDISORDER don't help a bit! There is NO WAY POSSIBLE that you ARE NOT feeling some type of pain living with this illness!! Sorry!!! Your loved ones who have this illness ARE LYING TO YOU! I LIED IF I'VE EVER TOLD YOU I'M NOT IN PAIN! I HAVE PAIN EVERYDAY...JUST DIFFERENT TYPES! I CAN TOLERATE MOST BUT THE MOMENT I ACTUALLY SAY TO ANYONE...I AM HURTING (IT'S VERY SERIOUS) !