Jan. 23, 2017

{{This is just ridiculous!! If you are born or have a pre-existing condition(ex: sickle cell, cystic fibrosis, etc.) this applies to you. We already have a difficult time with some of the healthcare we receive, imagine adding issues with insurance on top of it for this illness we didn't ask for or contact ourselves. But we were born with it.....PASS THIS ON, LETS MAKE A DIFFERENCE!!! } }#sicklecellwarrior

Last night as his first order of business the new president signed an executive order to repeal the ACA. Here's what this means... even if you are safely covered behind employer-provided insurance, the protections set forth in the ACA (Affordable Care Act), apply to you too. And if those protections are repealed along with the rest (or any part) of the program, you will also be affected.

That means you may be trapped in a job, because your pre-existing condition may mean you will not qualify for new insurance offered by another employer, and the cost of private insurance would be prohibitive. If your employer shuts down, lays you off, or even changes insurers, well, you are out of luck. The Senate GOP voted this week that they would not require an eventual ACA replacement to protect against discrimination for pre-existing conditions, which was the standard before the ACA.

It means that you (a young adult under the age of 26) or your adult children (over 18) may find yourselves without the protection of insurance, as the Senate GOP voted last night that an eventual ACA replacement will not be required to allow young people to remain on their parents' insurance up to the age of 26.

It means that if you have a high-risk pregnancy, or life-threatening illness such as cancer, you may not be able to afford all the care you need, because you may hit lifetime or annual caps. If you have an infant born with any kind of severe medical condition, or premature, they may hit their lifetime insurance cap before they are old enough to walk. The Senate GOP voted last night that an eventual ACA replacement program would not be required to prohibit lifetime insurance caps.

It means that if you are a struggling parent who is uninsured or under-insured, you will no longer be able to count on at least your kids getting the routine medical and dental care they need under the Children's Health Insurance Plan (CHIP). The Senate GOP voted that CHIP is not required to be protected by an eventual ACA replacement.
These provisions of the ACA affect everyone in this country, not just those without insurance through their employers.

If you are not okay with these changes, call your representatives and let them know what's important to you. Nothing has been set in stone yet, but our legislators have shown us a map of what they plan to do if constituents don't make their voices heard loud and clear.

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Chastain Lewis 

Nov. 7, 2016

Christina Edington is dealing with this as we speak! She told them upfront and they STILL hired her bc she was qualified for the job. They brushed our illness off LIKE EVERYONE ELSE DOES and now they want to fire her for it...SMH! Advice anyone?

Aug. 17, 2016

Is his child actually his blood? He is the daddy irregardless of what the test says but is it possible for being tested negative for having trait and the mother be tested with trait to have a child with the full-blown sickle cell disease? If I had answered this a month ago it would be a whole other comment or response. But being that I just found out officially that my father has trait and he was tested as negative as well when I was little it makes you wonder. So what are you guys think?

Jun. 11, 2016

Yes. Shun has pressure building up in his brain. He has a 80-90% chance of stroke. They increased his meds double. A very high dose for a 4 year old