Have you ever suspect that a nurse was dipping in your doses?

Sickle Cell discussion topics...

The topic on the table for discussion is SELF REFLECTION. HOW do you see yourself as an ADVOCATE? DO YOU FEEL THAT YOUR VOICE IS RESPECTED? 

CAREGIVERS NEVER GET PROPS 4 WHAT THEY DO.

Texas Gov. Greg Abbott, who was injured in an accident years ago, uses a wheel chair.Advocates are demanding he support a pay raise for those who attend to the disabled. Disability-rights activists blockaded the door to Gov. Greg Abbott’s officeTuesday to call for wage increases for community-basedattendants who provide assistance to disabled individuals who need help with daily living tasks.

Activists said they would not
leave until they were given a
meeting with an Abbott staffer,
and called for Abbott to issue a
statement of support for a $10-per-hour base wage for
attendants, but by late
afternoon the received no
meeting and were lying on the
ground outside the office.

Abbott, who was injured in an
accident years ago, uses a
wheelchair. He didn’t speak to
the group’s demands, and a
spokesperson said there would
be no comment.

In Texas, attendant caregivers
often are paid a base wage of
$7.86 per hour, according to the
state.

Cathy Cranston, community
organizer for nonviolent
disability activist group ADAPT
Texas, and PACT, the Personal
Attendant Coalition of Texas,
said she has been an attendant
for 30 years without much
monetary gain.

“I was making $5.25 in the ’90s.
That’s only a $2 increase since
then,” said Cranston, who
participated in the rally.

 

 

Cranston said the group would
stay outside Abbott’s office until
its demands were met or the
members were arrested.

The Texas Department of Aging
and Disability Services has
programs that provide home
care for those with disabilities,
but many must wait for
services, Abbott’s Healthy
Texans Plan states.

The Health and Human Services
Commission has requested $97.9
million for 2016 and 2017,
which would allow for a 5
percent wage increase for
attendants.

The attendant wage is built into
the Medicaid payment rate and
minimum attendant wage
requirements. Activists were
calling for a $10-per-hour wage.

The current minimum wage
requirement under Medicaid is
$7.86 per hour. According to
Linda Edwards Gockel,
spokeswoman for the Health
and Human Services
Commission, some programs
have Medicaid payment rates
that are up to $10.11 per hour
for attendants.

The Senate’s proposed budget
calls for an increase in the base
pay of community attendant
care workers to $8 per hour,
while the House proposed an
increase to $7.97 per hour.

The governor’s budget includes
$105.3 million to recruit and
retain personal attendants.

But the proposals aren’t enough
for those who rely on the
services.

James Van Winkle, who lives in
Conroe and has used a
wheelchair and a service dog
since an accident in 1995, said
he has gone through three
attendants in three months.

“I need very minimal services,”
Van Winkle said. “With my dog,
I can get out of bed. I’m a
minimal person, and I can’t
even find an attendant.”

Van Winkle said the proposed
pay still would not be enough to
deal with the cost of living in
Texas cities.

“We need to treat (attendants)
with dignity and respect
because they treat us with
dignity and respect,” Van
Winkle said.

GENE EDITING...HMMM...SOUNDS INTERESTING!;;

GENE EDITING BREAKTHROUGH MAY LEAD TO SICKLE CELL CURE...
WHAT DO YOU GUYS THINK? A CURE FOR THE YOUNG ADULTS MAY FEEL BENEFICIAL BECAUSE IT CAN STOP ADDITIONAL DAMAGE THAT COMES WITH AGING.

http://www.medicaldaily.com/sickle-cell-anemia-cure-foreseeable-after-scientists-use-gene-editing-revert-333340

THIS SYCK SPOTLIGHT

Apr. 14, 2015

ACHIEVING IN SPITE OF...

This man is a great inspiration to me. His name is Dr. Wayne A. I. Frederick, he is currently the interim president of Howard University. He is also a medical doctor. In fact, he is a surgeon. He has served as the provost for Howard University and has earned a MBA from Howard University. He has accomplished all of these achievements despite the fact he has sickle cell anemia. God uses people like this to let me know that I too can climb to the top of my career and any other endeavors that I may seek. I can't and will not let sickle cell anemia stop me from reaching my hopes and dreams. My fellow sickle warriors let us keep the faith in God and believe that he will give us the desires of our hearts.

A VEIN LOCATOR...ABOUT TIME!!

I heard about this vein finder a few months ago and I was like TO GOOD TO BE TRUE....BUT

WHAT DO YOU THINK?

Go to SHAWNSTESTIMONY AT SYCK NEWS.

http://www.industrytap.com/veinviewer-means-no-poking-people-relentlessly-locate-veins/27706

COMMUNITY involvement to spread awareness

Apr. 21, 2015

Africa Sickle Cell Foundation

ABOUT US
AFRICA SICKLE CELL SUPPORT FOUNDATION, INC. (ASCSF) is a charitable, non-profit organization that operates for the benefit of individuals living with Sickle Cell Disease in African countries.
ASCSF was founded to meet the unmet needs of individuals living with Sickle Cell Disease. The foundation educates people with Sickle Cell about how to manage their disease and improve their quality of life. 
ASCSF promotes the concept, “live a life worth living”. Therefore, ASCSF provides people with the resources, materials, and tools to foster interdependence, which ultimately increases education and their quality of health care. 

We address the needs of individuals with sickle cell disease and their families by emphasizing educational and support programs and services that meet the physical, psychosocial and economic needs of our clients.

With a growing population of individuals with sickle cell disease and sickle cell Africa, the primary focus of ASCSF is to educate, screen and counsel those persons at risk of having children with sickle cell disease and other hemoglobin disorders.
Our purpose is on-going and our need is ever present. As long as babies continue to be born with sickle cell disease and sickle cell trait, there will be a need for our services. Until there’s a cure, we will continue to serve.
 
MISSION / VISION

The Mission of ASCSF is to provide comprehensive social services to improve the quality of life of individuals living with Sickle Cell.

VISION: The vision of ASCSF is to increase education, health awareness, life skills, promote self-sufficiency, and improve the quality of life of individuals living with Sickle Cell.



PURPOSE
(a) To provide quality and comprehensive services through diagnostic testing, evaluation, counseling and supportive services to individuals and families facing the daily challenges of the disease and those at risk.
(b) Ongoing follow-up diagnostic testing, counseling, and tracking services for parents with infants who screen positive for the trait or disease; 
(c) Family Counseling and Support Services; 
(d) Coordination of medical, social services, education and support and promotion of teacher education and screening services. 
(e)  In addition, ASCSF will make outreach to other African region's for family education and the identification of the incidence of sickle cell disease.

PROGRAMS & EDUCATION 
ASCSF and its member organizations engage in community outreach and program efforts throughout the United States. These efforts may include but are not limited to: educational campaigns that build awareness of SCD and related conditions and programs that provide services such as genetic testing and counseling, case management and psychosocial support for individuals and families impacted by sickle cell disease.
In addition ASCSF has been tasked with creating educational materials for the African community. The development and promotion of these publications will aid Africans in understanding SCD and improving their overall health outcomes.
As ASCSF aggressively continues to combat the many challenges of sickle cell disease it is anticipated that many new programs will be developed in the near future in an effort to effectively serve those populations affected by SCD.

COMMUNITY SUPPORTERS

Apr. 14, 2015

SOLDIERS IN TRAINING SPREADING AWARENESS

THIS WAS POSTED RIGHT ON TIME FOR THE GRAND UNVEILING OF THE SITE. MY POST DESIGN USED TO MAKE THEIR AWARENESS TEE SHIRTS! SO CUTE!

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