Dec. 8, 2017

If you have received backlash please let us know so we can document your experience. If you reported your bad experience and it worked out for the better then please share that as well

Aug. 13, 2017
Apr. 12, 2017

 I just appealed my discharge with my insurance company because they are the ones paying the bills, not the Dr. They have to follow certain rules and when you see them violating your rights and violating HIPPA then you can report them! Once they are on appeal, they can't touch your meds or kick you out. My insurance gives me 2 and a half days for them to prove why they're discharging you and if they side with the Dr, you still have until the next day before 12 noon to leave and it'll still be covered!  It's all about your patient rights 😉😎

Jan. 22, 2017

The only problem I have with AVN is that I had my first surgery at the age of 16, and I was starting high school I was a cheerleader,drill team,dance team, and step team when I had my surgery they had scraped off the dead sickle cell blood off of my left hip I didn't have to get a hip replacement but they had told me when I get in my 40 I may have to get a hip replacement. But after my surgery the hospital sent me home without no physical therapy so right when I was supposed to start school I have start to notice that my left leg was turning in the wrong way and so they had to do another surgery on the left leg to turn my leg straight so that I don't have to walk with a limp but this time around I had physical therapy but I was walking with a cane and some crutches but my leg still was not healing right so they had found out that I was walking around with a broken leg for a whole year because they had messed up the second surgery so now I have to get another surgery so now for this surgery they had to put in a medal rod in my leg to fix  the broken bone so now I have a medal rod in my left leg for the rest of my life. I did have to do physical therapy to learn how to walk aging and thanks to the doctor I have one leg is shorter than the other one and the reason why for that is because when I had my first surgery I was only 16 years old and I was still growing if they would have waited until I stop growing I would not have to have walked with a limp for the rest of my life and some of the other sickle cell friends I know that have had the same surgery when they were young to had have the same problem but even worse than mine. It had took me 3 years of physical therapy to learn how to walk and also I missed out a lot of my high school years and the sad thing about it is that I didn't have a lot of problems of my left leg yes I did have AVN in my left leg but it was not all that bad yet the doctor saw a little bit of AVN on that leg my hip was not bothering me at all. This is my first time talking about this to people the only people that knows about this is my family and a few of my friends.

Jan. 17, 2017


This is an issue you will continually encounter from your primary care physicians and other medical
" professionals". This stigma, this notion, this stereotype, this lie, this assumption ; that the chronically pained sickle cell patient is a drug seeker.
As if your sickle cell and its compromising complex [All Body] severe pain causing issues are a scheme, a ruse, a Fairytale, a lie of some sort to get you or your child
" high" off of a pain prescription.
Ludicrous! Stand your ground and EDUCATE about your condition. Start establishing and insisting on a dialogue between those who direct hospital policy at that location or that area.
Get sickle cell advocacy help if you are new or not well versed in defending your child and position. Insist on an Administrative Hearing Request if they think you are playing. This will get things moving if they continue to NOT implement a plan of action or establish an ER "bolus" of some sort to get you and or your pain BETTER than manageable.
If your PCP (primary care physician) is not supportive or an advocate for you. DUMP EM'! in a heartbeat! This is You and or Your loved one you are fighting for. So don't give up. Make it happen. YOU CAN! And YOU Must. Thank you and multiple blessings.

Howard Moore